Hydrocephalus is a common condition for those with Spina-Bifida (Myelomeningocele). The natural circulation of CBF is blocked.

He has a Shunt. It's a one way bypass valve that allows fluid to escape from his skull. An internal catheter goes into his right hemisphere ventricle it flows to a valve anchored to his skull. It's a bump that looks like a large cyst. From there he has a drainage tube just under his skin that goes to his abdomen where the fluid is reabsorbed.

His malformed vertebrae are T8-T11 his paralysis and sensation is a conundrum for some. He doesn't have significant abdominal control the bottom right of his rib cage to a few inches above his waist on the left. However is legs and feet have active reflexive sensation just no active control. His toes and feet wiggle if you tickle or poke them. He doesn't feel any of it.

When he was about 8 yrs old he snapped his femur while goofing with his brothers. I was interviewed extensively until his ortho specialist was notified. Before I digress to far he never felt it. They set him in a Spica cast basically a full body to immobilize it and they never fully set it (because - insurance). It healed but now one leg is shorter now. Standing became difficult even with bracing. He was trying walking orthoses until then.

At any rate we have to pay close attention to his legs because of injuries. He's had several burns, fractures, and typical scrapes. But in the years we had many types of braces and orthoses as he grew or injured himself.

Adapting our home has always been a never changing process too. I'm sure you have figured out ways to adjust too.

I'm glad you are able to make progress.