In my, and most others' situation, a CSF leak is extremely dangerous.

However, I don't know anything about spina bifida or how it is treated. A shunt in his skull certainly a vastly different situation that I know very little about personally, especially the SBF you spoke of.

Certainly it must be a conundrum that he is paralyzed in his lower body, couldnt feel a femur break, but reacts to his feet being tickled even without feeling it.

Fascinating!

I'm really sorry to hear that his femur break didn't heal properly so he cannot stand up. I never imagined that someone paralyzed with no voluntary control of lower body could ever stand, never-ending walk!

It has been a huge struggle for me to walk correctly when my entire left leg was fiery pins and needles. Thankfulkyvnow only my left knee and the top of my left foot are consistently on fire.