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A side story below to explain what I'm talking about and why...
My late sister's kids, a niece and nephew plus nearly all of their 11 offspring (and most of their 23 grandchildren) have a hereditary disease commonly called F.A.P. that ultimately turns the literally thousands of intestinal polyps that F.A.P. causes to grow out of control -- and nearly always turn to cancer.
All who inherited it and whose colons are so afflicted have had major surgeries to remove varying degrees of their large intestines and sometimes their rectum to get rid of the cancer. My brother-in-law died from it at age 39 because it metastasized into his liver, kidneys, lubgs, and brain. He never knew that he had F.A.P. so never sought out treatment. By the time he did, it was too late and both of their children tested positive for it. I don't know why both of them chose to have so many children, knowing that most would end up with it too, but that is another story).
All of them eventually get a rebuilt, albeit quite short, elimination route and lose the bag about 6 months to a year after their surgeries to remove the large intestines (and they get a re-constructed rectum if they lose that too) It is a nightmare for them during the process, just as I figure it must be for you, especially having it happen to you without warning from a different cause.
Anyway, that info is all a lead up to asking you if your docs think that YOU could be a candidate for a rebuilt system to make your life easier without the bag?
A side question: If you experience the stuff they do after losing the large intestines, I'm guessing that you have a trial and error with your food intake? Some foods are okay and others are a never eat that again? (Salad and many veggies seem to be the one that really vex them as they can't digestive it without their large intestine.) Also, do you have to have special vitamin injections to make up for not being able to get the benefit of them for the same reason? My Crohn's and malabsorbtion disorder forces me to take massive doses of some vitamins just to get any to be absorbed.
Trish, I truly hope that you can get that reconstruction done and get rid of the stoma and bag. I can't really imagine how hard that is for you in so many ways and hope it can eventually be easier for you.
I hope I haven't asked any sticky questions. If so. Please just ignore them. I don't want to upset you or make you feel uncomfortable. I'm just interested and want so much for better health for you!
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Trish