She is struggling with a complete inability to use, move, or control her left side at all. Every attenpt triggers indescribable pain. It is not going well. She is crying inconsolably and repeatedly says she wants docs & PT to just "leave her alone" to stop the nerve pain even if that means losing control of her entire left side.
It is related to aggressively triggered nerve complications during the 2 surgeries (3rd &10th) and can't be fixed surgically, only with time and letting them rest. It is not unlike a swarm of angry bees striking out and dive bombing when poked.It just takes time for angry nerves to figure out that the knives are away and they can settled down and stop stinging. They are only being asked to do their usual boring jobs letting her body move. They dont understand English and feel attacked every time she moves, which she MUST DO to regain control over her body.
This has triggered my POA (power of attorney) financially and for health care. Both now in use because she has lost rationality from how sick she currently is, so I've authorized extraordinary means to get her through this highly negative state. My sister, Kristin, Brandon, my Dad, and her siblings want me to push hard without compromise because she would normally never give up... EVER... in spite of odds stacked against her. She would fight for her life and so will I.
Unfortunately, that means that she now has 4 newly broken, displaced ribs from aggressive CPR, 3 older fractures from previous CPR and a boatload of other pain from 2 major spine surgeries in less than a week's time. Mumzy is extremely tiny but it is shocking how hard she can fight when necessary.
Docs are cutrently setting up for multiple blood transfusions to increase strength she no longer has. Blood loss has a way of wiping out resilience that happen. So do two spinal cord dura tears still leaking CSF fluid from her spine.
Hoping the blood transfusions will restore her strength and fighting spirit so she can come back to us to fight for herself.
This isnt a great pix of any of them with the weird facial expressions but it shows the love FOR and OF their Grammy who comes to every single school and activity they are involved in. They adore each other! They would not easily adjust to losing her so we won't let that happen.
